May is Ehlers-Danlos Awareness Month!

For those of you who don’t know, Ehlers-Danlos Syndrome (EDS) affects the connective tissues such as the skin, joints, and blood vessel walls. EDS symptoms include joints that stretch farther than normal, or have stretchy or fragile skin. EDS symptoms and the severity can vary from person to person.

There are different types of EDS, some of which are genetically inherited. EDS can take decades to diagnose. Many people who are diagnosed were very flexible in their childhood and were often involved in gymnastics, cheerleading or dancing. Others bruise easily and may frequently dislocate something.

Some people with EDS find that compression can help. Compression garments increase blood flow and help speed up muscle recovery after overexertion. Braces can benefit people with the hypermobility EDS type by helping to stabilize the joints to relieve pain.

May is EDS Awareness Month and it is important to help spread the word. Here’s how you can get involved:

• Share your story online and connect with others
• Create special events in your local community to educate people
• Show your stripes! Rep zebra all month and make sure everyone knows why. You never know who you will inspire to advocate.

Additional Resources

Types of EDS – Rare Diseases

Get involved for EDS Awareness Month!

23 Signs You Grew Up With EDS – The Mighty

Patient Support – The Ehlers-Danlos Society