Best POTS and Dysautonomia Blogs
I hate to admit it, but sometimes I don’t have all the answers to compression product questions! But, I’ve found an amazing resource in the medical blogging community – brave men and women who are blogging about their medical conditions openly and honestly. I can’t say enough about how helpful it is to us, to not only understand the day to day challenges of living with a chronic medical condition, but also to be able to read someone’s personal account of using compression to treat medical symptoms.
I recently had a customer reach out about compression stockings for POTS/Dysautonomia. Dysautonomia is a disease that affects the autonomic nervous system, often manifested by a low blood pressure and/or a high heart rate upon standing (also, called Orthostatic Hypotension and/or POTS, Postural Orthostatic Tachycardia Syndrome). While I know that compression stockings are recommended by doctors to help manage some of the symptoms of POTS, I wasn’t quite sure which style or brand was best to recommend. So, I turned to the great community of bloggers who are managing POTS themselves and talking about compression products.
Since I found such helpful information there – I wanted to share it with everyone else! If you’ve recently been diagnosed with Dysautonomia, POTS or EDS, definitely check out the great blogs below to learn more.
With a Side of Salt is written by an amazing young woman in Arizona. Crista was diagnosed with POTS while she was in college and is now a patient at Mayo Clinic. Her writing is informative and strong (and sarcastic which I like!). She’s a great resource! Be sure to read her advice on compression socks.
Living with Bob is a prolific blog filled with SO MUCH information. I feel like I’ve only scratched the surface, but I definitely recommend. RustyHoe is very funny and very honest about her day to day struggles and triumphs. She also has lots of information on compression.
Lethargic Smile is written by Jackie, who has Postural Orthostatic Tachycardia Syndrome, Sjogren’s Syndrome, and Ehlers Danlos Syndrome (EDS). She is so positive and uplifting – it’s hard not to sit down and read 20 of her posts at once.
This is in no way a definitive list. Do you have any more blogs we should add? Let us know in the comments!